…First and foremost I apologize in advance, because this is going to get very exclamation point heavy and rambling. I can already tell. I know the gist of what I want to say, but not quite how I’m going to get there. I’ve spent a lot of the past four days completely speechless. In the best way. In a way I never thought possible.
So I guess I will start with reiterating that I am – and have always been, and almost to the level of naivety – an optimist. Even on my way to the appointment in which I was diagnosed with a terminal disease, I felt to my core that things are going to be okay. On my way home from that appointment, I still felt that way; although my definition of okay had changed. For all of my life, and especially for all of this shitty journey with this sucky disease, I knew – KNEW! – my tribe would rally when I needed them. My anxiety lies to me every day, and it lied so much harder and longer when I was younger about the tribe I had; or specifically, that I didn’t have the tribe I thought I did. I knew I was loved, of course, but my anxiety loves to tell me that I don’t have the level of love and support that I would like to think. Once I was diagnosed, that particular anxiety has fucked off forever because my faith in my tribe was swapped for concrete proof. People I didn’t even know very well showed up out of the woodwork to help. People it never even would have occurred to me would show up, did. In full force and with open hearts. When I had to leave my house and cram my life into a much smaller apartment, the core optimist in me knew I would have some help when I asked for it. Concrete proof arrived in the form of 14 friends showing up that day.
I am loved and I knew this. I am loved and you proved this.
I’ve kind of always been a mom friend. Caretaker. I considered it my job to make sure that my friends were okay, basing so much of my pride on my own self-reliance. I am the helper, not the helped. I knew I had people I could rely on for help, but I focused so much of my life and energy on proving to myself and to the world at large that I didn’t need them to. That has been the singular hardest part of this whole stupid disease so far. Admitting that I do in fact need them to. Will in fact increasingly rely upon them to. Will be completely unable to do anything by myself, at all, at some point. My life will become nothing but relying on other people. That’s been the worst part. Not losing my ability to walk, not being unable to control something so basic as my bladder, not losing my job, but knowing that I am going to be completely, utterly helpless. My strongest personality trait, my core sense of identity and pride, taken from me. It’s suuuuuuuuuper shitty.
In the early days of my diagnosis, I had Danielle. Thanks to her, in the early days I didn’t have to ask for anything because she asked on my behalf. We both knew that everything about this disease was going to be expensive, and she set up a CrowdRise fundraiser on my behalf. She organized my garage sale amazingly. Seriously, we had complete strangers complementing how well organized that sale was. It was really pretty amazing and made me a fair bit of money. Money used for moving expenses, and then lawyers fees, and then we stashed the rest away for the next inevitable crisis. Eventually CrowdRise kind of went defunct and became nonprofit only, and that account got closed. Over the last year or so, a few people have asked what happened to it because they had wanted to donate and were unable to. I could never quite bring myself to reopen that account because it was… You know, asking for help. It was something I always meant to do, and knew I probably would someday, I just needed to ask for help with it.
HAHAHAHA ASK FOR HELP. HOO-BOY.
Six days ago on Facebook, I made a post about these amazing mourning bracelets I found online. In the post I said that I was budgeting to hand these out at my funeral. And I am! Because they are amazing and important and you should totally check out that link. But in the comments for that post, along with many of my friends agreeing that the idea was amazing and awesome and worthy, a friend I’ve known forever mentioned again that I really ought to have some kind of fundraiser going. I’m budgeting for my own funeral, and they would like to help. Several friends chimed in to agree. My amazing friend Megan, who had taken over the account from Danielle when that relationship broke apart, hit me up to ask what I would like to do about it. She was happy to set a new one up for me, but she’s in Seattle and I’m in Portland and she would feel much better if the account were handled by someone locally. Which makes a lot of sense; I agreed with her that if some disaster were to befall me (like, as I explained to J later, my van breaking down and suddenly needing hundreds of dollars in repairs, for instance) I would need money right away and couldn’t necessarily wait for a bank transfer.
(In retrospect, I jinxed the fuck out of myself with that one, huh?)
We looked at local laws, and disability regulations, and Medi-Cal requirements and came to the conclusion there was really no reason for anyone to handle any aspect of the account but me. So, Sunday I went about resurrecting an old bank account that had sat idle since my mortgage payments. That took a lot of doing, as they’d put a hold on the account for lack of use, and apparently I had not changed my address with that bank and they have been happily charging me five dollars a month since April 2016 because my mailing address was wrong. Even though my account is paperless? And literally has always been? And they made no effort to call or email me to tell me they were charging me for having the wrong address for all the shit they’re not mailing me anyway? I’m in the middle of arguing with them about that one. Banks suck. Regardless, the account was now open and free to use, all I had to do was set up the actual Gofundme and post a link somewhere.
Yep. All I had to do.
So easy, right?
Just… Create the account. Post a link.
Ask for help.
And you know, that’s probably where it would still be sitting if my van hadn’t blown the fuck up. On my way home Monday night in the back of a medical transport unit, unaware if my van was going to require $200 or $2000 worth of repairs, or if it was repairable at all, I knew I had to set up the fund. That night. So I did. I created the fund, updated the link here on my blog, and then posted a link to it on my Facebook page with the words “Okay. It’s set up. Do whatever you like with this information. <3 I love you.”
Within one hour, I had three donations and 18 shares.
Within 24 hours, I was halfway to the arbitrary goal of $5000 I had set. I bumped it up to $7000. 24 hours later, I was halfway to that, too. Within an hour, I had my first donation containing triple digits. In three days, I was getting donations from complete strangers because my friends had shared the link. Yesterday, a very good friend I’ve made through a perfume decanting group of all things shared the link in that group, generating at least five donations just from that. Several friends with birthdays this month shared the link with their friends and family asking for donations on my behalf instead of birthday presents. (seriously you guys should have held out for a pony or something) Relatives of my friends who have heard my friends speak highly of me have donated. As it is right now, the generosity of my friends has netted me over $4000 and 450 shares.
In only five days.
This. This is where the exclamation points are about to happen. This is where the proof versus faith happened. I knew I would probably get some help once I was bold enough to ask for it. But this.
THIS HAS BEEN SO OVERWHELMINGLY AMAZING!
HOW THE FUCK DID I GET SO LUCKY?!
WHAT! EVEN! IS! MY! LIFE!
OH MY GOD, EVERYONE.
I’m not the sort of person who happy cries much. In fact, every single time I have done, has been directly because of some show of grace and generosity and love related to this disease. The kindness and love of my friends has brought me such emotional satisfaction and security, the likes of which I never would have known had it not been for this stupid disease. My faith said that if my life should turn to shit, my friends would have my back. Circumstances have proven that faith accurate and just – time and time again. But this.
This is been so much more than I ever could have anticipated in my most optimistic of dreams.
I could fill the rest of this blog for all time with just the phrase “THANK YOU!!!!!!!!!!!!!” over and over and over, and it would hardly be sufficient to express my gratitude. My love. My faith, absolutely justified. My awe at having so many amazing people in my life. My feeble attempts to somehow live up to all of the amazing and kind things people have said about me in their shared posts.
This is my blog, but tonight I lack proper words to put in it.
My life is so fucking magical.
Thank you all so much for your love, your generosity, your jokes, your grace, your friendship, your very existence in my orbit.
That’s it. I don’t have any clever way to wrap this up. I will now resist the temptation to copy paste “THANK YOU!!!!!!!!!!!!!” a million times.
I love you all so much.