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ALS : FTS

Seriously, Fuck This Disease.

A Grief Primer
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What the Hell?
Who the Hell?

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Xiomara Skuthorp

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Username

Xiomaraskuthorp

Email Address

joecuster@wwjmp.com

First Name

Xiomara

Last Name

Skuthorp

Dying Is Expensive

You can Donate Here, if you like.

Important Side Reading

The Silk Circle:
How Not To Say the Wrong Thing

Everything Does NOT Happen for a Reason:
What to Say Instead

Spoon Theory
Explaining Chronic Illness

Archivey Goodness

Archivey Goodness

Recently Rambling About…

OH SHIT, I DIED! July 11, 2023
I Feel May 11, 2023
The Sitch December 20, 2022
Record Scratch December 20, 2022
Hospitalized July 3, 2022

Categorically Speaking…

Administrative
Awareness
Background Information
Checking In
Coping Mechanisms
Dealing With It
Diagnosis
DME
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Not Entirely Related
pictures
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symptoms
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Awareness WARRIORRRR center circle bitches clinic days Danielle is my main babe death positivity death with dignity depression Dr Kim Goslin is the bomb god dammit all anyway going public with my own brand of idiocy grief is a private thing her name is incontinentia i'm sorry this is happening i am an electric voodoo doll i am not my disease ice buckets lol i don't even know what i'm doing i fail at bad news inappropriate humor is inappropriate i need to talk about this i seriously do not deserve this it's going to be okay literally ask me anything look ma I'm on teevee meds moving and mourning orbited by planets made of awesome preaching the gospel of awesome radicava Ranty McRantface seriously guys silk circle Silver linings bitches so friggin tie tie sucks to be me Sweary McSwearington symptoms check in take your bravery and shove it TMI train choo choo voice banking Walk for ALS weak and afraid and still awesome welcome to this whining wholly inappropriate and hilarious

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Dying is Expensive

I will get over myself and accept help from strangers.

You Can Donate Here

Mandatory Reading

The Silk Ring Theory :
How NOT to say the wrong thing and be a complete asshole to someone who's already having a horrible time of it, thank you. Don't make it worse.

Get Your Shit Together:
A very good guide to settling your affairs , writing your will, creating Advance Directives. This is important and you need to do this.

Start Here!

An Introduction (start at the first entry)
The Origin Story, Part One
The Origin Story, Part Two

What was I just saying?

OH SHIT, I DIED! July 11, 2023
I Feel May 11, 2023
The Sitch December 20, 2022
Record Scratch December 20, 2022
Hospitalized July 3, 2022

Archivey Goodness

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